ALS Specific Quality of Life- Short Form (ALSSQOL-SF): A Brief, Reliable and Valid Version of the ALSSQOL-R

Stephanie H. Felgoise; Richard Feinberg; Helen E Stephens; Paul Barkhaus; Kevin Boylan; James Caress; Lora L Clawson; Lauren Elman; Stephen A Goutman; Leo McCluskey; James Russell; Ezgi Tiryaki; Michael Weiss; Zachary Simmons

ALS Specific Quality of Life- Short Form (ALSSQOL-SF): A Brief, Reliable and Valid Version of the ALSSQOL-R

Stephanie H. Felgoise, Richard Feinberg, Helen E Stephens, Paul Barkhaus, Kevin Boylan, James Caress, Lora L Clawson, Lauren Elman, Stephen A Goutman, Leo McCluskey, James Russell, Ezgi Tiryaki, Michael Weiss, Zachary Simmons

Research output: Contribution to journal › Article › peer-review

Abstract

INTRODUCTION: The ALS Specific Quality of Life instrument and its revised version (ALSSQOL, ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. The current study aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina.

METHODS: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared to psychosocial and physical functioning measures.

RESULTS: The ALSSQOL-SF consisted of 20 items. Compared to the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15-25 minutes to 2-4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong.

DISCUSSION: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and provides clinically useful, valid information about persons with ALS. This article is protected by copyright. All rights reserved.

Original language	American English
Journal	Muscle Nerve
State	Published - Jul 20 2018

Keywords

ALS
ALSSQOL
Amyotrophic lateral sclerosis
Psychometrics
Quality of life
assessment

Disciplines

Medicine and Health Sciences

Cite this

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title = "ALS Specific Quality of Life- Short Form (ALSSQOL-SF): A Brief, Reliable and Valid Version of the ALSSQOL-R",

abstract = " INTRODUCTION: The ALS Specific Quality of Life instrument and its revised version (ALSSQOL, ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. The current study aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. METHODS: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared to psychosocial and physical functioning measures. RESULTS: The ALSSQOL-SF consisted of 20 items. Compared to the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15-25 minutes to 2-4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. DISCUSSION: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and provides clinically useful, valid information about persons with ALS. This article is protected by copyright. All rights reserved.",

keywords = "ALS, ALSSQOL, Amyotrophic lateral sclerosis, Psychometrics, Quality of life, assessment",

author = "Felgoise, {Stephanie H.} and Richard Feinberg and Stephens, {Helen E} and Paul Barkhaus and Kevin Boylan and James Caress and Clawson, {Lora L} and Lauren Elman and Goutman, {Stephen A} and Leo McCluskey and James Russell and Ezgi Tiryaki and Michael Weiss and Zachary Simmons",

year = "2018",

month = jul,

day = "20",

language = "American English",

journal = "Muscle Nerve",

}

TY - JOUR

T1 - ALS Specific Quality of Life- Short Form (ALSSQOL-SF): A Brief, Reliable and Valid Version of the ALSSQOL-R

AU - Felgoise, Stephanie H.

AU - Feinberg, Richard

AU - Stephens, Helen E

AU - Barkhaus, Paul

AU - Boylan, Kevin

AU - Caress, James

AU - Clawson, Lora L

AU - Elman, Lauren

AU - Goutman, Stephen A

AU - McCluskey, Leo

AU - Russell, James

AU - Tiryaki, Ezgi

AU - Weiss, Michael

AU - Simmons, Zachary

PY - 2018/7/20

Y1 - 2018/7/20

N2 - INTRODUCTION: The ALS Specific Quality of Life instrument and its revised version (ALSSQOL, ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. The current study aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. METHODS: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared to psychosocial and physical functioning measures. RESULTS: The ALSSQOL-SF consisted of 20 items. Compared to the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15-25 minutes to 2-4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. DISCUSSION: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and provides clinically useful, valid information about persons with ALS. This article is protected by copyright. All rights reserved.

AB - INTRODUCTION: The ALS Specific Quality of Life instrument and its revised version (ALSSQOL, ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. The current study aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. METHODS: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared to psychosocial and physical functioning measures. RESULTS: The ALSSQOL-SF consisted of 20 items. Compared to the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15-25 minutes to 2-4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. DISCUSSION: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and provides clinically useful, valid information about persons with ALS. This article is protected by copyright. All rights reserved.

KW - ALS

KW - ALSSQOL

KW - Amyotrophic lateral sclerosis

KW - Psychometrics

KW - Quality of life

KW - assessment

UR - https://digitalcommons.pcom.edu/scholarly_papers/1947

M3 - Article

JO - Muscle Nerve

JF - Muscle Nerve

ER -

ALS Specific Quality of Life- Short Form (ALSSQOL-SF): A Brief, Reliable and Valid Version of the ALSSQOL-R

Abstract

Keywords

Disciplines

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