Amyotrophic Lateral Sclerosis-specific Quality of Life-short Form (ALSSQOL-SF): A Brief, Reliable, and Valid Version of the ALSSQOL-R

Stephanie H. Felgoise; Richard Feinberg; Helen E Stephens; Paul Barkhaus; Kevin Boylan; James Caress; Lora L Clawson; Lauren Elman; Stephen A Goutman; Leo Mccluskey; James Russell; Ezgi Tiryaki; Michael Weiss; Zachary Simmons

Amyotrophic Lateral Sclerosis-specific Quality of Life-short Form (ALSSQOL-SF): A Brief, Reliable, and Valid Version of the ALSSQOL-R

Stephanie H. Felgoise, Richard Feinberg, Helen E Stephens, Paul Barkhaus, Kevin Boylan, James Caress, Lora L Clawson, Lauren Elman, Stephen A Goutman, Leo Mccluskey, James Russell, Ezgi Tiryaki, Michael Weiss, Zachary Simmons

Research output: Contribution to journal › Article › peer-review

Abstract

INTRODUCTION: The Amyotrophic Lateral Sclerosis (ALS)-Specific Quality of Life instrument and its revised version (ALSSQOL and ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. In this study we aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina.

METHODS: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared with psychosocial and physical functioning measures.

RESULTS: The ALSSQOL-SF consisted of 20 items. Compared with the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15-25 minutes to 2-4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong.

DISCUSSION: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and can provide clinically useful, valid information about persons with ALS. Muscle Nerve 58: 646-654, 2018.

Original language	American English
Journal	Muscle and Nerve
Volume	58
State	Published - Nov 1 2018

Keywords

80 and over
Adult
Aged
Amyotrophic Lateral Sclerosis
Cross-Sectional Studies
Female
Humans
Male
Middle Aged
Psychometrics
Quality of Life
Reproducibility of Results
Retrospective Studies
Surveys and Questionnaires

Disciplines

Medicine and Health Sciences
Rheumatology

Cite this

@article{d934b19a3329448ca58b77e9e8a8b2b2,

title = "Amyotrophic Lateral Sclerosis-specific Quality of Life-short Form (ALSSQOL-SF): A Brief, Reliable, and Valid Version of the ALSSQOL-R",

abstract = " INTRODUCTION: The Amyotrophic Lateral Sclerosis (ALS)-Specific Quality of Life instrument and its revised version (ALSSQOL and ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. In this study we aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. METHODS: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared with psychosocial and physical functioning measures. RESULTS: The ALSSQOL-SF consisted of 20 items. Compared with the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15-25 minutes to 2-4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. DISCUSSION: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and can provide clinically useful, valid information about persons with ALS. Muscle Nerve 58: 646-654, 2018.",

keywords = "80 and over, Adult, Aged, Amyotrophic Lateral Sclerosis, Cross-Sectional Studies, Female, Humans, Male, Middle Aged, Psychometrics, Quality of Life, Reproducibility of Results, Retrospective Studies, Surveys and Questionnaires",

author = "Felgoise, {Stephanie H.} and Richard Feinberg and Stephens, {Helen E} and Paul Barkhaus and Kevin Boylan and James Caress and Clawson, {Lora L} and Lauren Elman and Goutman, {Stephen A} and Leo Mccluskey and James Russell and Ezgi Tiryaki and Michael Weiss and Zachary Simmons",

year = "2018",

month = nov,

day = "1",

language = "American English",

volume = "58",

journal = "Muscle and Nerve",

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TY - JOUR

T1 - Amyotrophic Lateral Sclerosis-specific Quality of Life-short Form (ALSSQOL-SF): A Brief, Reliable, and Valid Version of the ALSSQOL-R

AU - Felgoise, Stephanie H.

AU - Feinberg, Richard

AU - Stephens, Helen E

AU - Barkhaus, Paul

AU - Boylan, Kevin

AU - Caress, James

AU - Clawson, Lora L

AU - Elman, Lauren

AU - Goutman, Stephen A

AU - Mccluskey, Leo

AU - Russell, James

AU - Tiryaki, Ezgi

AU - Weiss, Michael

AU - Simmons, Zachary

PY - 2018/11/1

Y1 - 2018/11/1

N2 - INTRODUCTION: The Amyotrophic Lateral Sclerosis (ALS)-Specific Quality of Life instrument and its revised version (ALSSQOL and ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. In this study we aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. METHODS: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared with psychosocial and physical functioning measures. RESULTS: The ALSSQOL-SF consisted of 20 items. Compared with the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15-25 minutes to 2-4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. DISCUSSION: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and can provide clinically useful, valid information about persons with ALS. Muscle Nerve 58: 646-654, 2018.

AB - INTRODUCTION: The Amyotrophic Lateral Sclerosis (ALS)-Specific Quality of Life instrument and its revised version (ALSSQOL and ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. In this study we aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. METHODS: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared with psychosocial and physical functioning measures. RESULTS: The ALSSQOL-SF consisted of 20 items. Compared with the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15-25 minutes to 2-4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. DISCUSSION: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and can provide clinically useful, valid information about persons with ALS. Muscle Nerve 58: 646-654, 2018.

KW - 80 and over

KW - Adult

KW - Aged

KW - Amyotrophic Lateral Sclerosis

KW - Cross-Sectional Studies

KW - Female

KW - Humans

KW - Male

KW - Middle Aged

KW - Psychometrics

KW - Quality of Life

KW - Reproducibility of Results

KW - Retrospective Studies

KW - Surveys and Questionnaires

UR - https://digitalcommons.pcom.edu/scholarly_papers/1988

M3 - Article

VL - 58

JO - Muscle and Nerve

JF - Muscle and Nerve

ER -

Amyotrophic Lateral Sclerosis-specific Quality of Life-short Form (ALSSQOL-SF): A Brief, Reliable, and Valid Version of the ALSSQOL-R

Abstract

Keywords

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