Examining patient experiences and interactions with healthcare providers in the context of a Polycystic Ovary Syndrome (PCOS) diagnosis

Polycystic Ovary Syndrome (PCOS) is a common endocrine disorder affecting 15-20% of individuals of reproductive age, yet its impact extends far beyond the boundaries of reproductive health1. PCOS is characterized by a hallmark feature of hyperandrogenism, which manifests through a variety of clinical presentations including acne, hirsutism, anovulation, and irregular menstrual cycles2. The excessive production of androgens can lead to lifelong challenges such as insulin resistance, infertility, and difficulties with weight management3. Although the reproductive and metabolic features of PCOS are well-researched, the psychosocial burden and patient experiences surrounding diagnosis and treatment are less understood. Many individuals with PCOS report delayed diagnoses, inconsistent counseling, and feelings of dismissal or invalidation by healthcare providers, suggesting a concerning gap in patient-centered care and education4. This poster aims to examine patient experiences and interactions with healthcare professionals regarding PCOS diagnosis and management. The data were collected from a quantitative, cross-sectional electronic survey study distributed via Reddit and Facebook forums. Eligible participants completed an anonymous, self-reported REDCap survey that collected demographic information and assessed experiences with PCOS-related health outcomes through free-response items, symptom checklists, and the PCOS Quality of Life Scale (PCOSQOL). This poster examines how provider interactions influence patient knowledge, support, and well-being, and discusses strategies to improve communication, counseling, and long-term care for individuals living with PCOS. Because PCOS symptoms affect patients to varying degrees, centering patient perspectives is essential to identifying gaps between clinical care and patient needs and to highlighting opportunities for more comprehensive, patient-centered approaches to management and education.