QoL in Child LQTS Patients Compared to Cardiac Patients

Elizabeth A. Waldron; Stephanie H Felgoise; Carmella Tress; Katherine Lawrence; Victoria L. Vetter

QoL in Child LQTS Patients Compared to Cardiac Patients

Elizabeth A. Waldron, Stephanie H Felgoise, Carmella Tress, Katherine Lawrence, Victoria L. Vetter

Research output: Other contribution

Abstract

Introduction:

• Long QT Syndrome (LQTS) is a life threatening geneticallyinherited cardiac arrhythmia disorder affecting approximately 1:2500 persons1, often diagnosed in childhood.

• Management of LQTS changes patients’ lifestyles which can affect quality of life (QoL). Patients have restrictions in physical activity, diet, treatment of noncardiac conditions; take daily doses of medicine and/or have implantable cardiac devices (pacemaker/defibrillator).

• General pediatirc cardiac patients show significantly worse QoL in comparison to healthy controls2,3.

• Nearly 1 in 5 with other cardiac disorders reported impaired psychosocial functioning3.

• The effects of implanted cardiac rhythm devices in cardiac patients demonstrated a significant effect on QoL in pediatric patient scores4. • LQTS patients are typically not assessed for psychological symptoms.

• Little research on QoL in pediatric LQTS patients has been conducted to determine if psychosocial interventions are warranted.

Original language	American English
State	Published - May 1 2013

Disciplines

Life Sciences
Medicine and Health Sciences

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title = "QoL in Child LQTS Patients Compared to Cardiac Patients",

abstract = " Introduction: • Long QT Syndrome (LQTS) is a life threatening geneticallyinherited cardiac arrhythmia disorder affecting approximately 1:2500 persons1, often diagnosed in childhood. • Management of LQTS changes patients{\textquoteright} lifestyles which can affect quality of life (QoL). Patients have restrictions in physical activity, diet, treatment of noncardiac conditions; take daily doses of medicine and/or have implantable cardiac devices (pacemaker/defibrillator). • General pediatirc cardiac patients show significantly worse QoL in comparison to healthy controls2,3. • Nearly 1 in 5 with other cardiac disorders reported impaired psychosocial functioning3. • The effects of implanted cardiac rhythm devices in cardiac patients demonstrated a significant effect on QoL in pediatric patient scores4. • LQTS patients are typically not assessed for psychological symptoms. • Little research on QoL in pediatric LQTS patients has been conducted to determine if psychosocial interventions are warranted.",

author = "Waldron, {Elizabeth A.} and Felgoise, {Stephanie H} and Carmella Tress and Katherine Lawrence and Vetter, {Victoria L.}",

year = "2013",

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day = "1",

language = "American English",

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TY - GEN

T1 - QoL in Child LQTS Patients Compared to Cardiac Patients

AU - Waldron, Elizabeth A.

AU - Felgoise, Stephanie H

AU - Tress, Carmella

AU - Lawrence, Katherine

AU - Vetter, Victoria L.

PY - 2013/5/1

Y1 - 2013/5/1

N2 - Introduction: • Long QT Syndrome (LQTS) is a life threatening geneticallyinherited cardiac arrhythmia disorder affecting approximately 1:2500 persons1, often diagnosed in childhood. • Management of LQTS changes patients’ lifestyles which can affect quality of life (QoL). Patients have restrictions in physical activity, diet, treatment of noncardiac conditions; take daily doses of medicine and/or have implantable cardiac devices (pacemaker/defibrillator). • General pediatirc cardiac patients show significantly worse QoL in comparison to healthy controls2,3. • Nearly 1 in 5 with other cardiac disorders reported impaired psychosocial functioning3. • The effects of implanted cardiac rhythm devices in cardiac patients demonstrated a significant effect on QoL in pediatric patient scores4. • LQTS patients are typically not assessed for psychological symptoms. • Little research on QoL in pediatric LQTS patients has been conducted to determine if psychosocial interventions are warranted.

AB - Introduction: • Long QT Syndrome (LQTS) is a life threatening geneticallyinherited cardiac arrhythmia disorder affecting approximately 1:2500 persons1, often diagnosed in childhood. • Management of LQTS changes patients’ lifestyles which can affect quality of life (QoL). Patients have restrictions in physical activity, diet, treatment of noncardiac conditions; take daily doses of medicine and/or have implantable cardiac devices (pacemaker/defibrillator). • General pediatirc cardiac patients show significantly worse QoL in comparison to healthy controls2,3. • Nearly 1 in 5 with other cardiac disorders reported impaired psychosocial functioning3. • The effects of implanted cardiac rhythm devices in cardiac patients demonstrated a significant effect on QoL in pediatric patient scores4. • LQTS patients are typically not assessed for psychological symptoms. • Little research on QoL in pediatric LQTS patients has been conducted to determine if psychosocial interventions are warranted.

UR - https://digitalcommons.pcom.edu/research_day/research_day2013/research2013/5

M3 - Other contribution

ER -

QoL in Child LQTS Patients Compared to Cardiac Patients

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